Tackling Rare Diseases in the UK: an interview with Nick Sireau of Findacure
This month, we interviewed Dr Nick Sireau, Co-founder and Chairman of Findacure, as part of our Ashoka Series. Founded in 2012, Findacure aims to help patients and find treatments for rare and ultra-rare diseases. Nick outlines his organisation’s unique model, which combines building and supporting patient groups with enabling the ‘repurposing’ of generic drugs. He also shares his views on why the pharmaceutical industry commits so little funding to research for rare diseases and talks about Findacure’s efforts to launch a Social Impact Bond (SIB).